[Appeared previously on
Special Education Advisor blog http://www.specialeducationadvisor.com/playing-and-winning-the-school-districts-game-of-chicken/]
Probably the most frustrating
part of being the parent of a child with a different ability[1]
is the response from the very organization you hoped you could trust the most
to do right by your child – your school district. After all, teachers and administrators are
trained to adapt the teaching environment to help my child, right? (No.) I pay my property taxes, so I should be able
to control how the schools work, right? (You should, yes, but in reality you
don’t.)
So what should I do when the
school district won’t do what they are supposed to do for my child?
The answer to this is simple:
learn how and why the school district plays a game of chicken with you, the
parent, and how to win that game.
The Game of Chicken
You’ve probably witnessed or
been in the game of chicken with your school district, but maybe didn’t even
know it. All you know is that your child
is suffering and the school doesn’t seem to be doing anything to help. Your child’s grades may even be failing. Perhaps, worse, they may be doing harmful
things to your child, like physically restraining him/her or locking your child
into an isolation room or putting him/her in a classroom with bad behavior
kids. Your child is not a bad behavior
child[2]
because you have a diagnosis that says otherwise.
The game of chicken may also
be occurring at any stage of the game – prior to your child’s diagnosis; before
a 504 plan; before an IEP plan; and even after the IEP plan is in place. Essentially, it appears to you as the parent
as they just are doing nothing. For
example, you may be requesting an Independent Educational Evaluation (IEE) for
your child, which is your right as a parent[3],
but the school says that you have to use their panel of approved
evaluators. The school district is
playing chicken to see (a) if you know your rights; and (b) whether you know
your rights or not, you’ll fight hard enough to use your own evaluators rather
than those the school says you must use.
Defining the Game of Chicken
is easy enough: seeing if you, the parent, blink first and give up your fight.
It really has nothing to do
with whether you’re right or wrong. It
has to do with whether you are prepared to fight for your child and your
child’s rights or if you’ll give in either because you think the school
district really has your best interests at heart or you don’t have the stomach
or resources to fight to the end.
Usually, the school district wins this Game of Chicken. Unfortunately, your child loses.
But you don’t have to lose
the Game of Chicken. All you need is
some information and will power (sometimes, depending on how stubborn the
school district is, you’ll also need a lawyer and some money).
Why a Game of Chicken?
First, let’s discuss why the
school district plays this game. You may
have heard some of their excuses – “we don’t have this in the budget right now”
or “we don’t have the resources to do this” or “do you know how many children
with special needs we have to deal with?”
All of these are extremely lame (and invalid) excuses. None of them are the REAL reason the school
district plays the Game of Chicken.
The real reason the school
district does this is . . . wait for it . . . they usually get away with
it. The longer they put off complying
with the law, the more money they save the school district or the money can be
directed at one of their existing programs, like school sports, etc. The school district knows that most parents
of special needs kids don’t know their legal rights or the requirements placed
on the schools. Thus, the parents don’t
know that if they fight hard or long enough, the school district MUST comply or
have to pay to send your child to another school district that can accommodate
his/her needs.
Let’s go back to our example about the IEE. You’ve done your research and found some
qualified people to do the evaluation, but they aren’t on the school board’s
approved list of evaluators. The school
district tells you, no, you have to use our list. Not only are they wrong, but the school
district has to pay for the evaluation by your IEE team, not you.[4] Most parents will think to themselves, “Well,
I want this done right, so I’ll just pay for the IEE out of my own
pocket.” You’ve just spent money you
didn’t have to.
The truth is that the school districts must comply with
federal and state laws and regulations on these issues and will only do so if
really pushed by those who know their rights.
This is one reason that if you aren’t adequately informed and trained on
handling special education matters, you need an advocate or lawyer who is on
your side. It will save you time and
money while you’re in the game.
How to Win the Game
There are three key tips to winning the Game of Chicken for
your child with special needs. (1) Don’t
back down. (2) Know the rules. (3) Focus on the goal. You may think these sound pretty generic and
apply to any game or sport and you’d be right.
That’s because they apply to the Game of Chicken just like they would
apply to a soccer match.
1. Don’t
Back Down.
Tom Petty sings, “Hey, baby, there ain’t no easy way out . .
. Hey, I, will stand my ground . . . and I won’t back down.”[5] Make this your theme song.
As a 25 year veteran of the courtroom and numerous legal
squabbles, I understand that confrontation is not everyone’s cup of tea and
that it can be very intimidating. You
can feel that the cards are stacked against you. And, in some ways, you’re right. But laws have been enacted to level the deck
and put more power on your side.
If you think of classic games of chicken, rule #1 in all of
them is not to be the first to back down.
For example, there is the highly dangerous game of chicken people play
with cars.[6] Each person faces their car towards the other
person’s car and begins driving towards a head-on collision. The reality is that both sides know they
don’t want to hit head-on and risk serious injury or death. The key to the game is just to force the
other driver to turn away first – in other words, be the chicken who backs
down.
The example above shows you just how stupid this Game of
Chicken is. And it is no less stupid
when a school district plays it with your child. Again, a life is at risk – your child’s life
and education.
You may be the type of person who doesn’t have the stomach
to fight so hard. But, always remember,
this is for your child. Would you jump
in front of a car and push your child to the side of the road to save his/her
life? Of course you would. So, if you’re willing to risk death to save
your child, you need to have the same level of spunk when dealing with the
school district. On the plus side, you
are not likely to risk injury or death sitting in a school meeting room.
Also, don’t feel a sense of guilt if you know you aren’t the
kind of person who can fight like that.
Not everyone is. I didn’t realize
I was until several years into my legal career when I had to fight like crazy
for my client. After that, I knew I was
the kind of person who could put up one hell of a fight, but I also realized
that not everyone was cut out for that.
If you are not cut out for the big fight, you should
consider hiring a professional – an advocate, an attorney, or an expert in
special education. This will involve
some money, but in some cases you can get that money back.[7] But a professional will know all the tricks
in the Game of Chicken and is well-trained in the law and methods of advocacy
to help you. A professional will not
back down.
2. Know The Rules.
Read, read, read. I
realize that at a very stressful time, it is difficult to concentrate enough to
read complex laws and information (one article I read had about 30 tips on what
to do in IEP meetings). But the better
informed you are, the better you will do in the school district’s Game of
Chicken. You will be a better advocate
for your child.
Imagine playing the game of Monopoly, but not knowing the
rules. You can probably guess that
you’re supposed to roll the dice and move your piece around the board. But what then? Why are all these street names on the
board? Why do they have a dollar figure
on them? Why are there sets of the
street names with the same color? Why is
there a jail? How do I win this game?
You see how difficult it is to play and win the game of
Monopoly not knowing the rules. The same
applies to special education and each step in the process without knowing your
rights or the rules. If you don’t know
the rules in this Game of Chicken, the school district will win every time and
your child will lose.
Knowledge is power and that is no less true here. If you don’t have the time or ability to
learn your rights on your own, hire a professional. That is their job.
Even if you don’t hire a professional, don’t walk into that meeting
without knowing the rules of the game.
3. Focus on the Goal.
Like all sports and games, there are intermediate goals and
ultimate goals. For example in football,
the intermediate goal is to get the football across the goal line or kick it
through the uprights to get some points.
The ultimate goal in football is to have the most points when time runs
out so you win the game.
The same holds true for the special education process for
your child. There are intermediate goals
– get an evaluation; get a diagnosis; get an IEP plan; and have the school
execute the IEP plan properly.[8] The ultimate goal is to get your child a free
and appropriate public education (FAPE).[9]
You need to focus on the intermediate goal that your child
needs right now (or for the upcoming meeting).
That focus needs to clearly define where you are in the process for your
child, what outcome do you need from this step, and how will this step help you
in the next step. Again, reading and
knowledge will help you focus.
You also need to avoid distractions. One distraction may be what I call “shooting
the messenger”. Since our daily contact
in our student’s education is his/her teacher(s), you may blame one or more of
those teachers. It is a natural
reaction, but it is a distraction. Often,
the teachers are not involved in the Game of Chicken. Most teachers are well-meaning and truly want
the best for your child. There are
always some bad apples in the bunch, but my experience has been mostly positive
with the teachers. It is the
administrators and members of the school board that are the problem, because
they are the bean counters – the ones who watch the budget and where money is
spent in the district, especially for special needs.
So your focus needs to be not only on the goal, but also in
who your opponent truly is in the Game of Chicken. Part of that focus may be to learn who those
people are – it could be the school principal, it could be school board members,
it could be the school psychologist or therapist, or it could be the
superintendent of schools. It will
depend on your individual school district and how it works.
Once you have your focus, you can stare straight into the
eyes of your opponent and win the Game of Chicken. You will be empowered by knowing that the
school district will HAVE to blink first, as long as you follow the above 3
tips.
Best of luck to you and to your children! My wish is that all parents of special needs
kids who need some help in education win the Game of Chicken and those kids ultimately
win the game of life!
[1]
I try not to use the prefix “dis” for that word, because it doesn’t accurately
reflect the truth about our kids or what is “normal”.
[2]
Studies, like the one conducted in England (http://www.dailymail.co.uk/news/article-1079510/Children-broken-homes-times-likely-suffer-mental-troubles-says-Government-study.html),
show that children from broken homes are more likely to have mental troubles,
including behavioral problems.
[3]
Individuals with Disabilities Education Act of 2004, 20 U.S.C. §1415(b)(1).
[4]
See “Letter to Alice D. Parker,” Wrightslaw.com reprinted from U.S. Department
of Education, Office of Special Education Programs, http://www.wrightslaw.com/info/test.eval.choice.osep.htm.
[5]
Tom Petty, “I Won’t Back Down,” © Warner/Chappell Music, Inc., EMI Music Publishing.
[6]
DO NOT EVER PLAY THE GAME OF CHICKEN WITH YOUR CAR! This is only a stunt that is done in movies
by professionals.
[7]
20 U.S.C. §1415(i)(3)(B)(i) and Fed.R.Civ.P. Rule 11.
[8]
These are just a few goals. There are
more not listed here.
[9]
FAPE or “free appropriate public education” refers to several laws that
interact with each other, but the most important is Section 504 of the
Rehabilitation Act of 1973, as amended, 29 U.S.C. §794. See http://www2.ed.gov/about/offices/list/ocr/docs/edlite-FAPE504.html
for more information.
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